Two Steps Forward...
...after stepping back
When I wake up in the morning, I feel pretty good. Not perfect, but the neuropathy in my arms and hands is low and my body has no sense of “heaviness”.
I can still feel the effects of stem cells and the repair they accomplish as I sleep through the night.
But my condition is degenerative; the more things I try to accomplish through the day, the more pressure on my neck, the more impact on my spinal cord, the more my neuropathy weighs me down. I need to sit a number of times every day. And as soon as my activity lessens, the neuropathy eases as well. This has more or less been the case since my diagnosis. Before my first stem cell therapy, it had become a daily measure of how much I could do as I was increasingly getting worse.
Following my first trip to Panama, it was more usually “two steps forward, one step back” during the 90-day period after stem cell therapy. I’m currently @ 45 days since my second treatment. If the trend continues, I will experience more improvement through the middle of August. I sure hope so.
As it is, I’m still working on my gait. Typing isn’t as easy as before and takes me longer, but I’m working through the neuropathy. Time will tell.
But I can tell that I’m on a timer; by the end of the next 45 days, it’s a matter of wait and see.
Barring a major change, I may take a hiatus with this blog for a while. I’m getting so much less done than I used to, and I have many, many interests beyond my condition. I hope to add to my music blog, which I have ignored for months. And I continue to reach out to anyone I feel could help push the FDA toward approving stem cell therapy for spinal cord injuries in the United States.
I continue to appreciate all the good wishes I receive; have a great summer!